Hi Everyone :)
After making several videos (including a few I've made below), I decided to start a blog about my journey with Fibromyalgia. I plan on starting a video blog on Youtube in the near future but thought I'd also document how this disease can, and does, affect my life in so many ways. As everyone with FM knows, living with this disease is a day to day struggle. Every day is a fight and we all miss the people we used to be. I sure as shit know I miss the lively, happy, confident and relaxed woman I used to be. I miss being able to live without pain and everything else that FM has bought into my life. My husband misses her, my brother misses her, my best friends miss her, my boss misses her. I'm so glad I have photos of who I was before this disease...it gives me hope that one day, I might be able to feel genuinely happy again. Genuinely optimistic again. Genuinely me again.
I don't have much time so I won't go into how I was diagnosed or how my FM came to be, but I plan on going into it in detail in my next post. I have noticed that a lot of people who believe they have FM need, and want, to know how others with this disease were diagnosed. As you all know, or will find out, a lot of doctors will simply not diagnose this disease. Some doctors won't diagnose you because they don't believe this disease exists (these doctors are the kind of doctors who usually miss diseases in people whether it's MS, Lupus or RA) - but sometimes doctors won't diagnose you because there is no standard testing for FM available. Some doctors will believe you're sick, but until their 100% sure and 100% confident that you have FM - they will not make it official. I for one know how terrifying it is to know you're sick, very sick, and to only be told "I don't know what it is" by doctors. I'll get into this in the next post.
In the meantime, if you're suffering FM and need a friend please add me and watch the videos below. If you're not suffering FM and don't understand the condition, then please watch my videos below so you can get a clearer picture of what FM sufferers deal with on a daily basis. We are never, ever going to receive the cure that we NEED and that we DESERVE unless there is more awareness about this disease. That goes for Lupus patients as well.
CFS, FM, Lupus and M.E are serious diseases - sometimes fatal. They are just as serious as other autoimmune diseases but have next to no awareness compared to diseases like MS (which I may also have by the way). Unfortunately, the only people spreading this much needed awareness are people who suffer from these diseases. Is that fair? No it's not. We have enough to deal with.
Rant over - Until my next post, gentle hugs :)
Em
xoxo
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